“I didn’t want to be defined by my illness, and I didn’t want to be seen as weak, but having Type 1 does make you different and it’s important that everyone around knows so they can help if you have severe low blood sugar,” mentioned Mr. Boudreaux, 35, who lives in Monterey, Calif., and works for the nonprofit group Beyond Type 1.
Ms. Hepner, too, has spent a lot of her life downplaying the illness, even along with her husband, Mr. Mossman. She recalled his confusion early of their relationship when he awoke to search out her discombobulated and drenched in sweat, the results of hypoglycemia, or low blood sugar. The extra Mr. Mossman, a cinematographer, realized concerning the illness, the extra he pressed her to make the movie.
For years, Ms. Hepner stood her floor, anxious about drawing undesirable consideration to her well being. “It’s a competitive world out there and I just didn’t want people to think, ‘Oh, she’s not thinking straight because her blood sugar is high,’” she mentioned.
But over time, the ubiquity of pink-ribbon breast most cancers consciousness campaigns and extremely publicized efforts to treatment Alzheimer’s made Ms. Hepner notice her filmmaking expertise may change public perceptions of Type 1, a illness that’s practically invisible, partially as a result of many individuals who’ve it don’t look sick.
She hopes to alter different misperceptions, together with the notion that diabetes is a comparatively inconsequential and “manageable” sickness, one which has been popularized by Big Pharma’s feel-good drug tv commercials that characteristic confident sufferers taking part in tennis and basketball and piloting scorching air balloons.